Background
The National Human Subjects Protection Advisory Committee (NHRPAC) approved advice on this issue at its January 28-29, 2002 committee meeting. Read the full recommendation, including the following definition and advice:
Definition: Public use data files are data files prepared by investigators or data suppliers with the intent of making them available for public use. The data available to the public are not individually identified or maintained in a readily identifiable form.
Inventory of Public Use Data Files: Institutions are urged to post a list of approved publicly available data sets, including data files reviewed at that institution that qualify for public availability.
IRB Review IS required in the following cases:
- Investigators who seek to merge or enhance data sets in such a way that individuals might be identified must submit an IRB application.
- Use of restricted datasets requires application to the IRB for review and approval.
- If submitting a proposal to obtain the use of a dataset is required, an application to the IRB for review and approval is also required.
- If the investigator seeks to obtain additional information from the database owner, then an application to the IRB for review and approval is also required.
- If a data use agreement is involved, then an application to the IRB for review and approval is also required.
The list of public use data sets that follows has been reviewed by the University of Tennessee, Knoxville, IRB with the intent of making these data files available for use with no further review by the UTK IRB necessary, as long as the following criteria are met:
- Research will not involve any merging of any of the data sets in such a way that individuals might be identified, and
- The researcher will not enhance the public data sets with identifiable, or potentially identifiable data.
Investigators who wish to have additional data sets added to the inventory may submit to the IRB for review a Public Data Set Nomination Form. If the IRB finds upon review that the additional data set meets the established criteria, it will be added to the inventory.
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UT, Knoxville Inventory of Public Use Data Sets Users of public use data sets do not need to submit an IRB application to use such files or seek a determination that the use of the public data files meets the criteria for being exempt from IRB review. |
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| Site of Data | Data Set(s) |
| Agency for Healthcare Research and Quality | |
| American College of Surgeons (ACS) | |
| American National Election Studies, Stanford University and University of Michigan | http://www.electionstudies.org/ |
| Bureau of Labor Statistics | Public Use data sets only, IRB approval required for restricted and geo-coded/zip code data sets
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| University of California, Los Angeles (UCLA) | California Health Interview Survey (public use data files only) |
| University of California, Los Angeles (UCLA) Institute for Social Science Research (ISSR) | Social Science Data Archives |
| California Office of Statewide Health Planning and Development | Home Health Agency and Hospice Facility Annual Utilization Data |
| Centers for Disease Control and Prevention including the National Center for Health Statistics | Public data sets including but not limited to the following:
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| China Census Datasets log in via UT Libraries |
A collection of zipped census datasets |
| China Data Online, University of Michigan log in via UT Libraries |
A collection of statistics about China |
| The Commonwealth Fund | Survey of Older Americans 2004 |
| Cornell University | Cornell Institute for Social and Economic Research (CISER) |
| Cross-National Data Center in Luxembourg | Luxembourg Income Study (LIS) |
| Data-Planet Statistical Datasets log in via UT Libraries |
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| Duke University and National Institute on aging | National Long-Term Care Survey |
| Economic Research Service (ERS), US Department of Agriculture (USDA) | Agricultural Resource Management Survey (ARMS) |
| University of Essex Institute for Social and Economic Research | British Household Panel Survey |
| European University Institute | German Socio-Economic Panel Survey (G-SOEP) |
| Federal Reserve System | Survey of Consumer Finances (SCF) |
| HIV Prevention Trials Network | Vaccine Preparedness Study/Uninfected Protocol Cohort |
| International City/County Management Association log in via UT Libraries | ICMA Datasets |
| International Country Risk Guide log in via UT Libraries | ICRG Table 3B Political Stability Data |
| International Terrorism log in via UT Libraries | Attributes of Terrorist Events (ITERATE) 1968-2010 |
| ICPSR (Inter-University Consortium for Political and Social Science Research) University of Michigan log in via UT Libraries | Public data sets including, but not limited to the following:
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| University of Michigan Institute for Social Research | Health and Retirement Study Survey of Consumers (SCA) |
| University of Michigan National Archive of Computerized Data on Aging | Advanced Cognitive Training for Independent Vital Elderly, 1999-2001 (ACTIVE), public data only. Apply through IRB to use restricted sets. |
| Medicare Hospice Compare Data Set | Provided by the Centers for Medicare & Medicaid Services, these data allow you to compare the quality of care provided by Medicare-certified hospice agencies throughout the nation. https://data.medicare.gov/ |
| Minnesota Population Center, University of Minnesota | Integrated Public Use Microdata Series, International https://international.ipums.org/international/ |
| University of Minnesota | FINBIN places detailed reports on whole farm, crop, and livestock financials at your fingertips. |
| Murray Research Archive, Harvard University http://www.murray.harvard.edu/ | |
| National Agricultural Statistics Service (NASS), U.S. Department of Agriculture | Census of Agriculture and other data collected and distributed by NASS http://www.nass.usda.gov/ |
| National Alliance for Caregiving | Caregiving in the US-Years 2009, 2010, & 2015 |
| National Cancer Institute (NIH) | Health Information National Trends Survey (HINTS) http://hints.cancer.gov/ |
| National Collegiate Athletic Association (NCAA) | NCAA Injury Surveillance Program (ISP) http://www.ncaa.org/health-and-safety/medical-conditions/sports-injuries |
| National Highway Traffic Safety Administration |
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| ORNL and U. S. Department of Energy Land Scan Datasets log in via UT Libraries | The LandScan Global Archive includes all of the historical datasets of the LandScan Global Population Database back to the year 2000. |
| Perceptual Robotics Lab (PeRL) at the University of Michigan | Ford Campus Vision and Lidar Data Set |
| RavenPack | RavenPack News Analytics 4.0 www.ravenpack.com/products |
| Research Data Assistance Center, University of Minnesota | Medicare Healthcare Cost Report Information System (HCRIS) http://www.resdac.org/cms-data/files/hcris |
| Roper Center for Public Opinion Research log in via UT Libraries | |
| St. Jude Children’s Research Hospital | Childhood Cancer Survivor Study https://ccss.stjude.org/ |
| Social Explorer log in via UT Libraries | |
| Social Science Electronic Data Library (SSEDL) log in via UT Libraries | Library of data files from eight topically-based health and social science collections |
| UK Data Service, University of Essex and University of Manchester | National Child Development Study http://discover.ukdataservice.ac.uk/series/?sn=2000032 |
| US Agency for International Development | Demographic and Health Surveys (DHS) http://www.dhsprogram.com/ |
| US Department of Agriculture | Continuing Survey of Food Intakes by Individuals (CSFII) http://www.ars.usda.gov/Main/docs.htm?docid=14392 |
| US Department of Commerce | US Census Bureau U. S. Foreign Trade Data log in via UT Libraries |
| US Department of Education | National Center for Education Statistics http://nces.ed.gov/ |
| US Department of Health and Human Services | Hospital CompareNational Epidemiologic Survey on Alcohol and Related Conditions (NESARC)Organ Procurement and Transplantation Network |
| US Department of Justice | National Crime Victimization Survey School Crime Supplements |
| United Nations Statistics Division | UNdata |
| Washington State Department of Health | Comprehensive Hospital Abstract Reporting System (CHARS; public data only) |
| University of Wisconsin Data and Information Services Center | Better Access to Data for Global Interdisciplinary Research BADGIR |
| University of Wisconsin Institute on Aging | Midlife in the United States (MIDUS) |
| World Bank | World Development Indicators, Global Development Finance, and additional statistical data files from the World Bank |
| World Health Organization | Global School-Based Student Health Survey (GSHS) www.who.int/chp/gshs/en |